Attorney General Brian L. Schwalb today issued a Consumer Alert to customers of the genetic testing company 23AndMe, warning District residents that their genetic data may be at risk after the company declared bankruptcy this week. While the company states that there will be no change to the storage, management, or protection of customer data, it is important to protect your sensitive genetic data from risk. For example, the company may attempt to transfer or sell your genetic data as part of the bankruptcy proceedings.
“District residents have a legal right to protect their sensitive information and data, and this guidance offers clear steps on how 23AndMe customers can take action and demand that their genetic information be deleted or destroyed,” said Attorney General Schwalb. “If you experience any issues contacting 23AndMe or ensuring that your information is protected, please contact my office.”
23andMe is an at-home genetic testing company that collected and analyzed sensitive and private genetic data from millions of Americans. On March 23, the company filed for Chapter 11 bankruptcy.
Due to the highly sensitive and personal nature of this data, Attorney General Schwalb urges District residents who utilized 23andMe’s services to consider their options to protect their genetic data:
How To Delete Your 23andMe Data:
- Log into your 23andMe account on their website.
- Locate the “Settings” section of your profile.
- Navigate to the “23andMe Data” section at the bottom of the page.
- Click “View” next to “23andMe Data”
- If you want a copy of your genetic data for personal storage, choose the option to download it to your device before proceeding.
- Scroll to the “Delete Data” section.
- Select “Permanently Delete Data.”
- Check your email for a confirmation email from 23andMe; follow the link in the email to confirm your deletion request.
How To Destroy Your Saliva Sample
If you previously opted to have your saliva sample and DNA stored by 23andMe, but want to change that preference, you can do so from your account settings page, under “Preferences.”
How To Revoke Research Permission
If you previously consented to 23andMe and third-party researchers using your genetic data and sample for research purposes, you can withdraw that consent from your account settings page, under the “Research and Product Consents” section.
Consumer Resources – Get Free Help!
If you have any concerns about this alert, please contact OAG by:
- Calling OAG’s Consumer Protection Hotline at (202) 442-9828;
- Emailing consumer.protection@dc.gov; or
- Submitting a complaint online at: https://oag.dc.gov/complaint.